The Ramblings of Nothing Exceptional...

Being the parent of a hearing impaired child comes with many challenges. Being the hearing impaired parent of a hearing impaired child makes those challenges,,, different. For instance, something I've noticed that typical hearing parents worry about is how their child is going to be perceived by its peers. Are they going to be made fun of or even have friends at all. I don't give that a second thought. Hearing impaired or not all children will either be liked or not. Then at the same time, because I have lived it, I fret over things other hearing parents might not notice. Number One on my list is and always has been education. My school days were a living HELL, and I don't say that lightly. School was a complete nightmare for me. Not because of lack of friends, but because of lack of education. I was always a failure. I never "applied" myself. I was "scatterbrained". I "didn't listen". I "wasn't paying attention". I "talked too much". And my personal favorite, I was "Lazy". All the while, I didn't know why I couldn't "apply myself" or "listen", or "remember my home work assignments". I wanted to be a good student so desperately. That's what made every day of my school life torture. I CAN NOT let my child live that experience. He's smart. He's beautiful. He's also hearing impaired. If that teacher had to go though one day trying to function in the hearing world with only hearing aids... Ha! I laugh at what would happen. Ok. I know I'm ranting here. I'm just angry.
Today at work it was so nice to be there, doing my job, listening to conversations and when I got lost, I could just walk away and go do my job. After a while you get used to missing everything. Actually its okay. I thought today how strange it was that I just accept it. I always think to myself, "its not important anyway". On second thought, though, maybe it is. I don't know.
I want to be more. I WANT TO HEAR WHAT YOUR SAYING! Okay it matters.
But the older I get the less it really matters. I just give the "didn't hear you, but I'll let you think I did" nod and walk away. Hide. Get lost in myself. I've spent my life within myself. Ok. This is turning into a rambling of sorts when all I really wanted to say was that I spent my life in the public school system here in Nowhere, Alabama as someone who was "nothing exceptional". When all the while, it was the teachers who were nothing exceptional, because they let a beautiful mind go to waste. They let my education slip right though their hands, and didn't even know it or care.
Ok. Again I'm rambling. I'll stop.



"There are few pains so grievous as to have seen, divined, or experienced how an exceptional man has missed his way and deteriorated"
~Friedrich Nietzsche

Information Packet For Your Childs Teacher

This was the best site I found for how to present your childs needs to the teacher. I changed what I needed to and added somethings that my child needed. A BIG Thank you to Cheryl and Listen Up for putting this info out there!
I also listed it at the bottom in my resources and website section.

http://www.listen-up.org/edu/hand-out.htm

Mommy's got Strep Throat!

I've got strep throat! Uggg. This is horrible. Thanks TK for giving my strep... ;)

I can't get near my kid.

I can't eat.

I can't swallow.

I can't sleep.

But what bugs me the most, is that

I CAN'T GO TO CAM'S SCHOOL AND TALK TO HIS TEACHERS ABOUT GETTING HIM THE SUPPORT HE NEEDS TO GET AN EDUCATION!

However, after much, much searching I found a great resources for explaining and giving the info to the teachers. I desperately was searching for something that would help me explain the strategies and techniques that were needed to give Cam the best start in school that we could give him. I put many searches together and came up with a package I think might work.



Later when I'm feeling better I'll give you a better look at what I came up with.

Trying to Hear in the Dark, "Anyone Got a Flashlight?"

My life is a beautiful Life.
I have my joy all wrapped up in a little boy. My mom is my best friend ~ she's my rock. My mom is a huge part of mine and Cam's life. She has a very special relationship with my son. She has been there holding my hand and giving me courage form the moment he was born. (well before he was born really.)
I have a few friends that I call true friends.
My large family consist of 2 brothers and 2 sisters. 5 nephews and 2 nieces and one great~niece. (Non of which are hearing impaired, by the way.)
I'm happily married to my husband, Lar. We have been married for 8 years. We've been together for 12. We have one child, my son Cam. Cam is also hearing impaired. He has mild to moderate bilateral hearing loss. His is almost identical to mine in every way except his loss is less. Lar is very loving and supportive of the hearing impaired needs that Cam and I bring to his life. We are very lucky.
I work in the restaurant industry, I'm the Lead Trainer and part of the Management Team. I Love my job. However, it is insanely crazy that I work in the restaurant industry, and wear hearing aids. Gees, Could I have picked a more challenging and noisy environment to work in?
Its a great experience to help me get to my goal. which is to finish my business degree and go into business management or an executive position with my current company. Of course if the opportunity arises elsewhere that would be great too.
We currently live in a small town in Alabama, one that has hardly no resources for the hearing impaired. We lived in Atlanta for 8 years that's where Cam was born and had all the advantages laid out for him. Its been a huge change to come back to my childhood home town. I suffered greatly here growing up because the schools here are so backwards when it comes to accommodating the handicapped. The educational and medical opportunities here are a joke. We have NO accredited private schools that are less than an hour away, we have no "real" pre-schools, we have no hearing impaired advocates (they too are an hour away), we have no audiologist for children, we have no Auditory Verbal Therapy (which I'm a HUGE fan of, Cam is a graduate from the Auditory Verbal Center of Atlanta) We have no help at all here. Its unbelievable really. Hearing Impairment is completely over looked here and unimportant. Its not even as good in Birmingham as it was in Atlanta, its better, but still not as good.
We moved back here so Cam could have the joy of growing up surrounded by family. Even though we are still glad we made that decision the sacrifices has been huge. The challenges here are abundant. I knew this when we decided to move back. I just didn't realize HOW challenging it was going to be in the year of 2008! I mean, can we please get beyond where we were when I was a kid?!? NO! Nothing has changed here. Why?!!! Its been 25 years, WHY are they still resistant to mainstreaming our children?
Living here is like trying to read lips in the dark and no one around here has a flashlight...
I'm up to it though, were gonna change this town, one little boy and his pissed off mommy ~you better watch out Little Town.
All I can say is "Bring it on!!!".